NCT06511752 · Early Phase 1 · RECRUITING
Educational Support Group Program for Bilingual and Spanish-speaking Carepartners and People With Progressive Aphasia
This study tests an education and support group for Spanish- and English-speaking families living with progressive aphasia, a condition that gradually affects language. It measures emotional well-being, communication, and speech. Groups meet online. It is an Early Phase 1 study, a small first look at whether the approach helps, not yet proven.
Eligibility criteria
Inclusion Criteria: All participants must: * speak Spanish and/or English (although participants may speak other languages in addition to Spanish and/or English) * identify as Hispanic and/or Latinx, * or their spouse/family member with PA identifies as Hispanic and/or Latinx * see and hear well enough to participate * have access to a computer or mobile device with video capability * have an internet connection Additional inclusion criteria for PA/ language-led dementia support group participants: * Individuals with PA: * Has a diagnosis of PA, or language-led dementia, and aphasia is one of the primary causes of difficulty with activities of daily living * Aware of language difficulties and willing to discuss them * Able to actively engage in group discussion and complete activities with minimal support * Able to regularly attend meetings * Willing to follow the rules of the support group for interacting with others respectfully Additional inclusion criteria for care partner support group plus implementation phase participants: * Individuals with PA: * Diagnosis of aphasia or dementia that is progressive in nature, and aphasia is one of the primary causes of difficulty with activities of daily living * Have some ability to communicate and understand communication in order to participate in training sessions * Are functionally able to engage in training sessions (e.g., able to maintain some attention, minimal challenging behavior that would cause disruption) * Have a care partner who also consents to participating in the project * Care partners: * Self-identification as a caregiver of an individual with a diagnosis of PA or language-led dementia * Willing to discuss caregiving for individuals with PA/ language-led dementia * Able to regularly attend meetings * Willing to follow the rules of the support group for interacting with others respectfully Exclusion Criteria: • Beyond the inclusion criteria included above, no additional exclusion criteria apply
The sponsor's own eligibility wording, lightly reformatted. The study team makes the final eligibility decision — worth discussing with your doctor.
Eligibility criteria as of 2026-06-10