NCT02055092 · COMPLETED
Young Onset Dementia - the Difficult Diagnosis and the Stressful Life for the Whole Family
This is an observational study, not a drug test. Researchers are looking at how young onset dementia, meaning symptoms starting before age 65, affects quality of life for patients and their families. They are also studying needs and use of healthcare services. No intervention is given. The phase is unspecified, and the goal is better future care.
You may qualify if
- Debut of dementia symptoms before the age of 65 years, but age at time of inclusion may be up to 70 years.
- FTD (Neary et al 1998 criteria)
- Primary progressive aphasia (Mesulam 2003 criteria)
- AD (DSM-IV)
- Community living, excl. dementia-specific living facilities manned 24/7
- Family member with regular contact at least x 1/week.
You're excluded if
- Lack of informed consent
- No close or appropriate family member
- Frontal lobe dysfunction due to non-progressive injury, i.e. cerebral infarction
- Frontal lobe dysfunction due to motor neuron disease (ALS)
- Other dementia specific condition with frontal lobe dysfunction (Huntington, HIV, Down syndrome, alcoholic dementia)
- Mental retardation
- Current substance abuse, incl. excessive alcohol consumption for the past 12 months
The sponsor's own eligibility wording, lightly reformatted. The study team makes the final eligibility decision — worth discussing with your doctor.
Eligibility criteria as of 2021-03-08